Post by Gb on Aug 15, 2005 23:24:54 GMT 10
A Letter From Susan Brecker:
Please send this to as many people as you know.
Dear Family and Friends,
My husband, Michael Brecker, has been diagnosed with MDS (myelodysplastic
syndrome) and it's critical that he has a bone marrow or blood stem cell transplant
(which has nothing to do with embryonic stem cells). The initial search for a donor,
including Michael's siblings and children, has not resulted in a suitable match.
We now hope to have as many people tested as possible that share a similar
genetic background as my husband. There are some important points to
understand concerning this process:
1. The screening involves only a blood test. It can be done very easily at a donor
center of the National Marrow Donor Program [NMDP]. The blood test identifies
your HLA tissue type. The cost for the test is generally $40 to $95 depending on
the donor center and the lab that completes the test. After this initial testing all
medical expenses are paid for by the patient or the patient’s insurance. Go to
www.marrow.org or call 1-800-MARROW-2 to find the donor center nearest you.
In NYC, you can make an appointment with Frazier at the NY Blood Bank
[212-570-3441 / 310 East 67th Street]. The test is $40. If it’s difficult to make
it to a blood center, private kits are available from Tepnel Life Codes [800-915-3695].
Order the “HLA [DR]” kit for $140. You will need to have a small vial of
blood drawn. Indicate to Tepnel that your test is for “Michael Brecker” and they
will know to whom to forward your results.
2. As a volunteer donor, you are never legally obligated to donate. A late decision
not to donate, however, can be life-threatening to a patient and among the most
disheartening news a family can ever receive. Consider your decision to be a
donor carefully. Thanks.
3. Should you be selected as a potential donor for Michael or any other patient,
please understand that there have been tremendous advances in "bone marrow
transplants" and the term itself can be misleading. At major cancer centers, blood
stem cells can, in nearly all instances, be harvested directly from your blood. A
donor is simply connected to a machine that separates the needed cells before
the donor’s blood reenters his/her system. On occasion such cells may have to
be harvested directly from your bone marrow. All the necessary precautions are
taken to ensure the donor’s well-being and safety. In the event you’re asked to
donate blood stem cells, a volunteer will first receive a thorough physical
examination—at no cost to him or herself.
4. A match for Michael would be most likely come from those of Eastern European
Jewish descent. If you or anyone you know are in this category please make a
special effort to immediately get tested. Please also note that testing is free for
minority groups at NMDP blood centers. Ultimately, you would be doing something
not just for Michael, but for so many more who are in a similar situation as my husband.
5. You are now part of our internet-based drive for donor testing. If everyone who
receives this email can motivate a bunch of their friends to get tested, and those
friends then forward the email to get their friends to get tested, we will have rapidly
expanded the pool of potential donors. I urge all of you to get tested
AS SOON AS POSSIBLE.
Finally, any local National Marrow Donor Program donor center can assist in
organizing a drive for Michael, although it would be desirable if you can get a
large group, e.g. a synagogue, to sponsor it. The “Gift of Life,” an organization
whose mission is to increase the representation of the Jewish people in the bone
marrow donor pool will test you for free when part of a donor drive organized through
“Gift of Life.” For further information call 561.988.0100 www.giftoflife.org.
There exist other organizations that have a similar mission for African Americans,
Asians, Hispanics, etc. Whatever your roots, please get tested to assist others!
Should you have any questions about any of this, do not hesitate to get in touch
with Michael's management office at 212.302.9200 or info@michaelbrecker.com
Thank you so much for your love and support. We are so grateful.
Susan ox